The 9th Annual Rare Disease Day Symposium being held on the North Haven campus of Quinnipiac University and virtually via ZOOM. This event is co-hosted by the Frank H. Netter MD School of Medicine and Connecticut Children’s Research Institute and supports our institutional priority to treating kids with rare diseases, with a focus entirely on pediatric disorders.
The event is being held on Friday, March 24th from 1:00 pm to 5:00 pm, with a reception immediately following.
KEYNOTE SPEAKERS: Robert Burgess, PhD and Gyula Acsadi, MD
RARE DISEASE PATIENT PANEL: moderated by NORD
ROUND TABLE DISCUSSION: (Providing Hope: Clinical Trials for Rare Diseases……..It takes a village) featuring members of our clinical trials team.
Reception, Art Exhibit, Music, Poster Session & Organization Exhibits
Accreditation: Connecticut Children's is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians. Connecticut Children's awards this live activity for a maximum of 3.5 AMA PRA Category 1 Credit(s)™.
Conflict of Interest Policy: All faculty participating in Continuing Medical Education activities sponsored by Connecticut Children’s are required to disclose to the program audience any actual or perceived conflict of interest related to the content of their presentation. Program planners have an obligation to resolve any actual conflicts of interest and share with the audience any safeguards put in place to prevent commercial bias from influencing the content. Gyula Acsadi, MD is an advisory committee member for Serepta. Carolyn Macica, PhD has received grant funds for contracted research from Ultragenyx. The additional planners, activity director and speaker(s) do not have a financial interest/arrangement or affiliation with any organizations that could be perceived as a real or apparent conflict of interest in the context of the subject of this presentation. All relevant financial relationships have been mitigated according to ACCME guidelines. The speaker(s) will not be discussing the use of any off-label product.
Commercial Support: This activity is not commercially supported.